For over two years, we have been sitting on a waiting list for specialized Section 28 services. Section 28 services provide an individual with a disability with a worker(s) who will help them with behavior management, community involvement, and activities of daily living. There is a subdivision within Section 28 that is referred to as […]
We had a whole slew of errands to get through this morning and it’s not always easy to make a lot of stops with Brian in tow as transitions are very tricky for him. He started fussing after the third stop so like any great Mom, I bribed him and his brother with some fast food […]
If I had a dollar for every time someone asked me, “How do you do it?”, I’m pretty sure our house would be pretty close to being paid off. No joke. I get asked this question ALL the time. It’s a well-meaning question but it’s a tricky question. How do I not do it? I love my child, so we do it. Simple as that. I’m guessing most of the people that ask me that question would do the same if they were in our shoes. But here, here’s how we do it….
We’re walking on eggshells around the OCD. We are on high alert at all times. Because it hurts Brian to not complete routines and we don’t want him to hurt.
Sometimes, when Brian and I are lying together in the quiet minutes before bed or just after waking up in the morning, I start talking. It just rolls off of my tongue and I let my whole heart out. Tonight, after hearing about another hard day at school and seeing bruises on his forehead and […]
Corbin held the remote out to his brother and as soon as Brian started to reach for it, he yanked it out of reach with a mischievous grin. Brian giggled. He did it again. And then again. Brian was still giggling but I told Corbin to cut it out and give it to his brother. […]
Life isn’t always the pretty posed family portrait in front of the red door with a wreath. Sometimes, it’s ugly and not fun. Thankfully those are just moments in the bigger picture of a pretty great life. Just in case, you thought I had it all together and you were wondering why you didn’t- never fear, I don’t. Here’s a glimpse of one of those very real afternoons/evenings where nothing goes right.
This year Brian trick or treated for a grand total of 20 minutes. Not the worst year, not the best either. During those entire 20 minutes he kept pointing back to home while whimpering. Once he got home he stripped his costume off with lightning speed and hunkered down on the couch. Brian loved his costume […]
Apparently Corbin was playing outside with his aunt, brother, and cousins yesterday afternoon when a neighborhood child asked, “What is wrong with him?”.
My sister and my niece quickly answered with the correct answer, “Nothing is wrong with him. He just has something called autism.”
The child replied, “What is that? Some kind of stupid disease?”.
Corbin has definitely had children ask him about his brother on many occasions and he usually does a wonderful job using it as a teaching experience. But we all have those days where our limits are already maxed.
Yesterday was my birthday. It was a wonderful day being thoroughly surprised by my husband, cupcakes at work, and lots of hugs from my amazing boys. There are a few more birthday wishes I wouldn’t have minded receiving for my birthday though: How about some sleep? The night before my birthday was another long one with Mr. […]
